5 Chronic Pain Support Groups Online

//5 Chronic Pain Support Groups Online

5 Chronic Pain Support Groups Online

Chronic pain can be a very isolating condition. Friends and family members may not be able to understand the daily struggle to complete the simplest of tasks, and they may be worn down from caregiving. It is essential that chronic pain patients get the support they need as part of their treatment plan, regardless of where they live or when they need it. Chronic pain support groups online can provide that support, 24/7, all over the world.

Benefits of joining chronic pain support groups

There is tremendous benefit to joining a chronic pain support group online.

Access: Anyone with an internet connection or smartphone can access people who understand what’s going on at any time of day. This can be invaluable especially for people who live in rural areas that are underserved in terms of face-to-face chronic pain support groups.

Anonymity: Some chronic pain patients prefer to keep their struggle private. In a small town, this can be difficult if there is one face-to-face group that everyone knows about. Chronic pain support groups online allow patients to maintain privacy while discussing intimate details of their pain and treatment plans.

Availability: This is closely tied to access but is a key point. For some chronic pain patients, the middle of the night can be a very difficult time. Online chronic pain support groups ensure that there is always someone awake when you need them.

Here are five chronic pain support groups online.

1. Pain Doctor’s online support groups and forums

Pain Doctor offers a variety of chronic pain support groups online, including forums, social media options like Pinterest and Twitter, and a place to share your story. We want everyone to know that chronic pain affects real people. It is important to us that we offer a place for chronic pain patients (and their loved ones) to share their story and find support.

2. Pain Doctor’s chronic pain support Facebook page

This Facebook group moderated by Pain Doctor has over 36,000 active members offering support, advice, and an ear at any time of the day or night. There are ten highly involved administrators and clear guidelines for conduct and participation, designed to protect the other members. This group is listed as a closed group, but anyone can make a simple request to join. The mission behind this page is simple:

“This group is for SUPPORT – where you can share and vent. We strive to be POSITIVE, SUPPORTIVE, and INSPIRING.”

3. The American Chronic Pain Association support groups

The American Chronic Pain Association (APA) has support groups in all 50 states. Their focus is not on symptoms or applying treatments. These support groups want to encourage all members to actively participate so that they can make daily life better for themselves and the others in the group:

“The goal of an ACPA group is to provide support, validation, and education in basic pain management and life skills. Groups are facilitated by the group members themselves and the success of the group is a shared responsibility.”

If there is not a support group that is local, chronic pain patients are encouraged to start their own. This group can meet strictly online if that is what is needed to reach the most members, or the group can be a mix of online forums support and in-person meetings.

4. SupportGroups: chronic pain

SupportGroups is an over-arching online forum that offers many different types of support. For chronic pain, their forum has over 12,600 active members. Members can post how they are feeling or updates on their treatment to receive support, advice, or just a willing ear.

While we would not normally recommend an unmoderated support group, this particular chronic pain support group seems to be a truly supportive, non-judgmental space for those needing a kind word. All posts have responses that are receptive and open.

If you have other comorbid conditions such as depression, there are support groups for that on this same site as well.

5. MDJunction

Our final chronic pain support group online is MDJunction, a great place to not only connect with others online but to also start and maintain an online journal of your personal story with pain. This is a general support group for chronic pain but does connect to other specific conditions, such as fibromyalgia.

As always, follow some simple safety guidelines when participating in chronic pain support groups online. Do not reveal personal information such as your address, the names of your family, or where you work. Look for forums and groups that are moderated and follow some guidelines for interacting (e.g., no personal attacks, no profanity, etc.).

Look for groups that have regular, consistent participation and a good number of members. And finally, remember that any medical advice given in these forums does not replace working with your doctor in real life. It is important to keep those lines of communication open.

Have you ever participated in any chronic pain support groups online? Which ones?

GET FREE EMAIL UPDATES!

Weekly updates on conditions, treatments, and news about everything happening inside pain medicine.

You have Successfully Subscribed!

By | 2016-11-17T10:18:02-07:00 April 13th, 2016|Tags: , |21 Comments

About the Author:

Pain Doctor
Pain Doctor was created with one mission in mind: help and educate people about their pain conditions, treatment options and find a doctor who can help end their pain issues.

21 Comments

  1. Avatar
    Luke Yancey August 18, 2016 at 6:50 am

    Thank you for listing all of the different sites where people can find support groups! I also want to add that you can use Facebook to find groups as well. My aunt is a member of a group on the site for sufferers of Rheumatoid Arthritis. Not only does her activity give her comfort, but it helps educate people like me who don’t know much about the pain that comes with the disease.

    • Pain Doctor
      Pain Doctor August 19, 2016 at 3:53 pm

      Facebook is another great resource for connecting with patients. Thanks for leaving a comment Luke!

  2. Avatar
    Emily November 17, 2016 at 7:35 am

    Thanks for the resources! People suffering can also sign up for a free tool from MedIQ at https://managingmypain.com/ it’s completely free, and when you sign up you will get little text messages over the course of 4 weeks with tips, motivation, or advice. I hope it helps anyone out there who needs it!

    • Pain Doctor
      Pain Doctor November 22, 2016 at 12:56 pm

      That sounds like a great one. Thanks for sharing it Emily!

  3. Avatar
    Kathy Galm January 23, 2017 at 4:14 am

    If anyone is interested in joining a new chronic pain FB page support group we would love to have you. It is called The Chronic Pain Train. We offer support for physical, emotional and spiritual pain. Help us change the face of chronic pain and leave no one behind.
    Hop Aboard. We hope to see you there.

    • Pain Doctor
      Pain Doctor January 23, 2017 at 6:46 pm

      That’s fantastic, thank you for sharing Kathy!

  4. Avatar
    Barbara W May 6, 2017 at 1:17 pm

    Hi Kathy, yes I would love to join your Chronic pain group I am an Advocacey pain patient with a lot of problems. I have been on the National Pain report site a lot. I have been very aware of what is going on with our government trying to take away our medication period. I have a lot of knowledge about what is going on. I am looking for people whom want to come out of their privacy to connect so we can actually do something about all that is going down against us. Could u advise me if you know about such people or a site that has THAT.

    • Avatar
      Mark July 8, 2017 at 3:14 pm

      Ive been a chronic pain sufferer for 26 years , seems all treatment has been cut off and I can’t find help.
      My pain came from a rollover car accident when I was 23 I’m now 61 with degenerative disc disease with arthritis and bone spurs.
      Ive exhausted all my options and and fed up being told the only thing that helps is now the wrong option.
      Where do people like me go from here , is there anybody out there.

      • Avatar
        Breonna April 26, 2018 at 9:09 pm

        I have a lot of things wrong with me too. I don’t know what to do. All my injuries were someone else’s fault and I live in pain every day.some minutes are worse than others. All courses of action fail. I don’t uneven know who I am sometimes because I can’t be me, my body won’t work right without extreme pain. I want to shout I AM NOT A ROBOT I FEEL PAIN. I don’t think it would help, not many people understand. I am in pain.

  5. Avatar
    Steve Florence July 25, 2017 at 2:32 am

    Don’t know what to do? Meaning were to get someone to talk to you and not put you down because you have too take pain meds.

  6. Avatar
    Rusty August 7, 2017 at 8:16 pm

    Thank you for being availiable. I have just started to check your resource out and hope to evaluate cognitive based approaches to chronic pain with Professionals and others of a peer group. I hope to be with you for a minimum amount of time to fully evaluate the varied support you may offer.

  7. Avatar
    Sunil September 19, 2017 at 9:53 pm

    There is an app that also works great in providing chronic pain support groups. It is called Reachout. You can see more details and download links at:

    http://www.reachout.life

    They cover chronic pain but also cancer, diabetes, mental health and some other major chronic diseases.

    • Pain Doctor
      Pain Doctor September 23, 2017 at 1:47 pm

      Thanks for sharing! Looks great.

  8. Avatar
    Lisa Marie Esposito March 30, 2018 at 4:24 pm

    Any support groups for people living with a partner who is in chronic pain?

  9. Avatar
    Marie April 2, 2018 at 2:04 pm

    It seems my chronic pain is consistent and non- stopping.

  10. Avatar
    Robby June 24, 2018 at 8:07 pm

    Hi I am new here and suffer from pain to point I stayin bed often. Other than walks and a movie to get out. So thankful mom helps with food and draft. I have lost about every fried I had. Mostlyithink becausei can. Not interact much. Also I traveled for work but can no long do that in easy way.i do not sunderstand losing friends most @52 . My first back surgery was 22 year ago and always recover enough to get by with few pain meds. Off I would go ever mucha issue til last surgery or wheelchair . So now no work and bored mostly tired so tired drugs my guess.

    • Pain Doctor
      Pain Doctor June 25, 2018 at 5:28 pm

      Hi there — We recommend reaching out to a support group listed on this page or our managed one at https://www.facebook.com/groups/11864244228/#_=_. Living with pain is hard, and many people don’t understand. Finding a community that does can help.

  11. Avatar
    Sue Wiles April 6, 2019 at 7:24 am

    I have been in intractable chronic pain since having lower lobe of lung removed in 2002. Pain medication gave me back SOME of my life. I had good days. I followed Dr. absolutely, never abused. Now my meds have been cut stating in late 2017 until I now have less than a fourth of what I was put on. My pain is unbearable, some withdrawls, I can’t breath well, no sleep, blood pressure is shooting up at times. My pain from the beginning was hard to treat. I can not take antidepressants(have tried many of them) I really don’t think I can make it much longer. I don’t remember what a good day feels like anymore. How can I ever trust a doctor again? I feel hopeless and doomed.

    • Pain Doctor
      Pain Doctor April 8, 2019 at 12:15 pm

      Thank you for sharing your story here Sue. We recommend reaching out to a support group listed on this page or our managed one at https://www.facebook.com/groups/11864244228/#_=_ for more help. Living with pain is hard, and many people don’t understand. Finding a community that does can help.

      We also remember looking into therapy for help with the very mental health aspects of living with pain. You can find more about that here: https://paindoctor.com/free-therapy-online/

Comments are closed.

Pin It on Pinterest

Schedule Your Appointment